Welcome to the Chiari Alliance Support Group where individuals diagnosed with Chiari Malformation and their caregivers come to find community, understanding, and support!
Who are we? This group has been established by a survivor of Chiari Malformation and Syringomyelia and a neurosurgery Nurse Practitioner with the goal of providing support and encouragement.
Mission: This support group was built on the foundation of the desire to build a community among individuals diagnosed with Chiari Malformation. We are truly striving to create an alliance through a focus on encouragement, support, and community.
Goal: To create a virtual community that will eventually materialize into an in-person support group, so we can put faces to names in the New Jersey/Philadelphia area.
The Site: The discussion forum link is located on the top banner of the site. This is where discussion can be had among members about various topics. Please read the "Welcome" topic under the "News" forum for an outline on how to best utilize this site.
We also have a tab that is a specific forum for caregivers. Being a caregiver of someone with Chiari is a unique and challenging experience. Please use this tab to support each other in your journey of caring for a child or loved one with this disorder.